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Alexandria IIH patient to speak at capital

Jennifer Larson, IIH Patient

In early 2012, Jennifer Larson, 38, of Alexandria, started showing symptoms of a brain tumor, but no tumor could be found. For two and a half years she searched for an answer to her illness.

After a visit to the neurology department in St. Cloud last May, the answer came in the form of idiopathic intracranial hypertension (IIH), a neurological condition of unknown cause defined by increased intracranial pressure around the brain without the presence of a tumor.

There is no known cause and no known cure for IIH at this time.

Because of the rarity of IIH, Larson was recently invited to speak at the Minnesota state capital on Rare Disease Day. Tuesday, February 24. The event will include several speakers affected by rare disease, legislators, researchers, and medical professionals.

Rare Disease Day, first observed in the U.S. in 2009, is sponsored by the National Organization for Rare Disorders (NORD). The organization currently holds 30 State House events across the country, hoping to educate state legislators on rare diseases and help aid their decisions on proposed legislation that affect rare disease patients and their daily challenges and struggles.

RARE DISEASE DAY

Minnesota State House Event

Tuesday, February 24

State Office Building

Room 400 North

100 Rev. Dr. Martin Luther King Jr. Blvd.

St Paul, MN 55155

10:30 a.m. to 12 p.m.

See more at rarediseaseday.us/events/events/#Minnesota

Annie Harman
Annie Harman is a reporter for Echo Press and The Osakis Review. She grew up in Detroit Lakes and graduated from the University of Wisconsin - Eau Claire with a degree in print journalism and history in May 2012. Follow her on Twitter at annieharman
(320) 763-1233
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